Meya, english version
Meya, almost 6,5 year’s, is an amazing little girl. She enjoys life and is happy (most days), she loves to laugh–especially her mighty pirate laughter–and she is fair and caring. Already in kindergarten her teachers talked about how important it was to her that everyone was included. For her first Christmas celebration there, they told us how she tried to get everyone to hold hands and dance around the tree; not easy considering she was only 2 years old and many were younger, hardly able to walk 🙂
When she was 2,5 years old she got epilepsy. We did not know it at first, but she had gotten something called Rasmussens Encephalitis (Read about the disease and how it started here)
She has spent so much time in hospitals these last four years that she should hate it. She doesn’t. She still, for some reason, loves hospitals and she has the ability to get nurses and doctors laughing. She’ll be hiding under her covers, shooting off some funny remark about something the doctor say’s. They remember her. After all exams, needles and wierd demands for a kid to sit still, she’s always positive, always strong, always as stubborn as an old goat..
The same goes for her medicine. Despite a handful of pills each morning and evening, she never complains. Well except for that one period when we had to give her fluid that tasted horribly. Then we had to bribe her to take it. With wood-logs.. Not candy or money. Wood-logs from the fireplace. I would go get a few logs and she was happy with just me playing and ”buying” her taking the medicine.. 🙂
That’s how she is. Happy, kind, strong and stubborn.



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